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|  | Cindy Gackle, OTR/L, MSCS  Cindy Gackle, OTR/L, MSCS, is a staff therapist at the University of Minnesota Medical Center, Fairview in Minneapolis, MN. She has specialized in teartment with multiple sclerosis since 1997. She has presented continuing education lectures at annual meetings of CMSC with Dr. Randall Schapiro as well as the Multiple Sclerosis Society, Minesotta Chapter ("A Course for Occupational and Physical Therapists"). She participated as a trainer in the research study "Effects of an Energy Conservation Course for Persons with MS" and is a staff member of the Heuga Center Can Do program.
Ms. Gackle participates on a variety of committees with the Minnesota Chapter of the MS Society (Clinical Advisory Commitee and Housing Task Force), as well as the National MS Society (Client Education Committee). She is the OT Project Leader for the CMSC Website. Her personal life has been deeply enriched because of her professional work with people with MS and she is excited about her ongoing learning with her patients.
| | | | | Susan Goodman, MA, RD, CDN, CDE
 Susan Goodman, MA, RD, CDN, CDE (Registered Dietitian, Certified Dietitian Nutritionist, Certified Diabetes Educator) is currently working at Mount Sinai School of Medicine in New York City where she is the Dietitian for the Division of Experimental Diabetes and Aging of the Department of Geriatrics and Adult Development. Prior to working as Nutritionist and Diabetes Educator for Lenox Hill Community Medical Group in New York City, she was Nutritionist and Faculty member at St. Joseph’s Regional Medical Center-Mount Sinai School of Medicine Program in Paterson, New Jersey. She served for more than 20 years on the Clinical Advisory Committee of the Greater North Jersey Chapter of the National Multiple Sclerosis Society. She is currently a Project Leader for the Consortium of Multiple Sclerosis Centers Website, for which she has authored the following articles: Too Tired to Cook, Too Tired To Chew, Could your Patient be Malnourished? and Developing a Low Cost Web-Based Patient Handout. Her chapter “The Role of Nutrition in Multiple Sclerosis” appears in the recently published Multiple Sclerosis: A Self-Care Guide to Wellness (Demos Medical Publishing, 2005). She is currently co-investigator, with Elsie Gulick, in a study looking at the dietary and physical activity practices of people with multiple sclerosis. | | | | | Elsie E. Gulick, PhD, FAAN, RN
Dr. Gulick is a Professor Emerita at Rutgers, The State University of New Jersey. Her experience in the area of multiple sclerosis includes a public health nurse caring for patients with MS and conducting research with persons with MS and their families. Her areas of research include instrument development, coping, social support, quality of life, effects of infant feeding method on the health of mothers with MS and their infants, and dietary and physical exercise patterns. | | | | | Stephen Hauser, M.D.
Stephen L. Hauser, M.D. is the Robert A. Fishman Distinguished Professor and Chair of the Department of Neurology at the UCSF. He is a graduate of the Massachusetts Institute of Technology (Phi Beta Kappa) and Harvard Medical School (Magna Cum Laude). He trained in internal medicine at the New York Hospital–Cornell Medical Center in neurology at the Massachusetts General Hospital (MGH) and in immunology at Harvard Medical School and the Institute Pasteur in Paris, France, and was a faculty member at the MGH before moving to UCSF in 1992.
A neuroimmunologist, Dr. Hauser’s research has focused on the biology of multiple sclerosis (MS). His laboratory described an MS-like disease model in which specific autoantibodies against a quantitatively minor myelin protein are major factors in producing the disease. He demonstrated that autoimmune T cells, previously thought to be the sole trigger for MS, must synergize with disease-causing antibodies to produce typical MS lesions. These findings then led to a clinical trial showing, for the first time, the effectiveness of a therapy directed against antibody-producing lymphocytes in MS. Another area of work has been the study of genetic susceptibility to MS and the identification of DNA variants that influence the risk of developing MS and other autoimmune diseases.
Dr. Hauser has served as President of the Medical Staff at UCSF, and currently serves on several scientific advisory boards for nonprofit organizations. He is a fellow of the American Academy of Arts and Sciences and the American Association of Physicians, is a member of the Institute of Medicine of the National Academy of Sciences, is an editor of the medical textbook Harrison’s Principles of Internal Medicine, is editor-in-chief of the journal Annals of Neurology and is the immediate past president of the American Neurological Association.
| | Robert Herndon, MD
 Dr. Herndon received his BA degree from the University of Chicago in 1955 and his MD with honors from the University of Tennessee in 1958. Following an Internship and Neurology residency at Wayne State University, he became a fellow in Neuropathology at the Montreal Neurological Institute for the next 20 months. After a 2 year stint as a neurologist in the U.S. Air Force, he spent a year long fellowship in Neuroanatomy at Harvard.
He began his Academic career as an Assistant Professor of Neurology at Stanford Medical School. While at Stanford he began looking at cerebrospinal fluid using an electron microscope and was astonished to find bits and pieces of myelin in the spinal fluid of MS patients having an exacerbation. In 1969, he was invited to become an Associate Professor as part of the new department of Neurology at Johns Hopkins Medical School.
Believing he might be able to develop a new test for multiple sclerosis based on the myelin fragments, he developed, with Dr. Guy McKhann and his laboratory, a radio-immuno-assay for myelin basic protein. While sometimes useful, the lack of specificity for MS was disappointing. In 1975, he took over the Multiple Sclerosis clinic at Johns Hopkins from Dr. Henry McFarland who had started the clinic and was moving to NIH. He also worked as an electron microscopist in the Neurovirology laboratory during this period.
In 1977, Dr. Herndon moved to the University of Rochester as Professor and Chairman of the Center for Brain Research and Professor of Neurology. While their, he ran an MS clinic and had the good fortune to recruit Dr. Richard Rudick, Dr. Randy Schiffer and Dr. Corey Ford as fellows. Dr. Rudick subsequently served on the faculty for several years before being recuited to the Mellen MS Center at the Cleveland Clinic.
While at the University of Rochester, he developed a working relationship with Dr. Lawrence Jacobs. With Dr. Jacobs and Dr. Andres Salazar at Walter Reed Army Hospital, we developed the original Intrathecal Interferon beta-1a trial that subsequently led to the Phase III interferon beta-1a (Avonex®) trial.
In 1988, after the University of Rochester closed the Center for Brain Research, Dr. Herndon moved to Good Samaritan Hospital in Portland Oregon as Chief of Neurology and Professor of Neurology at Oregon Health Sciences University. There he participate as one of the 4 sites in the phase III interferon beta-1a trial.
In 1994, the Oregon Health Sciences University closed the portion of the Neurology Residency at Good Samaritan Hospital and, after a short period in private practice, Dr. Herndon moved to the Jackson VA Medical Center and the University of Mississippi Medical Center. In 2002 he moved from the VA to the University while continuing to run the MS clinic at the VA.
Dr. Herndon has been involved with the Consortium of MS Centers since shortly after its inception and has served as President. He received the Presidential Award from the CMSC in 2002 and its’ Life Time Achievement Award in June 2006.
In 1997, Dr. Herndon broached the subject of an “on line journal” for the CMSC. He brought it up once or twice that year and the following year, the board agreed to go ahead with the project. Substantial grants were received from Berlex, Teva, Serono, Biogen (now Biogen Idec), Eastern Paralyzed Veterans (now United Spinal) and the Paralyzed Veterans of America, the “founding sponsors”. We contacted a company which helped us put together the first several issues, still available on line. Initially it was strictly on line but subsequently, we contacted Joe D’Onofrio who agreed to publish the journal, both on line and in print, supported by the advertising revenue. This began a long term relationship with him and his team who have been very supportive of the goals of the CMSC.
During this time the journal has grown slowly. It is indexed in CINHAL and we look forward to continued progress toward indexing in Index Medicus.
| | Jutta Hinrichs, BScOT, MSCS
 Jutta Hinrichs is an occupational therapist who has worked specifically in the area of MS for more than 13 years. She is currently the Program Coordinator of an interdisciplinary outpatient MS rehabilitation program named OPTIMUS (Out-Patient Treatments in Multiple Sclerosis), located in Calgary, Alberta, Canada. This program, which offers OT, PT, SW, Nursing and Psychology services, is associated with the University of Calgary MS Clinic. Her other role within the Calgary Health Region is as Professional Practice Leader for Occupational Therapy, SE Community Portfolio. Currently, she is a member of the CMSC Clinical Care Committee and an editorial advisor for the MS Exchange newsletter. As well, she has been an active volunteer with the MS Society of Canada for over 11 years, serving on their speaker's bureau, as a commiittee member and as a member of the Board of Directors at the Chapter, Provincial and National levels. | | | | | Brian Hutchinson, PT, MSCS, President of The Heuga Center  Brian Hutchinson was named President of The Heuga Center in May, 2002. During his tenure at the Center, Brian has served as Director of Program Development, Staff Physical Therapist and Special Events Coordinator. The Heuga Center, a nonprofit organization, conducts interactive, educational programs designed to incorporate physical activity and wellness into the lifestyles of persons living with multiple sclerosis. The flagship five-day CAN DO Program is the only program of its kind in the world.
Brian Hutchinson’s educational credentials include a B.S. from Slippery Rock University in Pennsylvania, with a major in Health Science and Athletic Training and a minor in Gerontology. His Master’s degrees are in exercise physiology from Florida International University, and physical therapy earned at Slippery Rock University.
Before coming to The Heuga Center as a full time staff member, Brian was a physical therapist at the Rocky Mountain Multiple Sclerosis Center in Englewood, CO. He continues to be a consulting physical therapist for the Rocky Mountain MS Center, as well as participating in an interdisciplinary spasticity clinic in Denver.
Brian is credited with implementing a follow-up program to The Heuga Center’s popular five-day CAN DO wellness program. The follow-up program, entitled CAN DO 2, works with past program participants to follow their progress since their attendance at a Heuga Center CAN DO program. Brian’s professional expertise and dedication to improving the lives of those with chronic conditions has helped lead the Center.
Brian Hutchinson serves as President on the board of governors for the Consortium of MS Centers and on the National Multiple Sclerosis Society – Clinical Advisory Committee. He also serves as a Clinical Consultant for the National Multiple Sclerosis Society and is part of the Medtronic Neurological rehabilitation speaker’s bureau. In addition to his work with these professional organizations, Brian regularly makes presentations to groups all over the world regarding the importance of exercise and interdisciplinary approaches in the management of MS. Brian Hutchinson lives in Eagle, Colorado with his wife, Jennifer, and daughters, Emma and Maelyn.
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