- the "At Your Fingertips" Guide
House, Barb Mews
_14.99 (non-UK residents - US$27.59 plus $1.64 for airmail postage)
by Elsie Gulick, PhD, FAAN,
The authors capture the concerns and experiences of persons
with MS using an interactive question and
response format. Areas of concern include those of persons newly diagnosed with
MS as well as those who have lived with MS a long time. The sequencing of
content is systematic beginning with a description of the disease, its prevalence
and disease types. Next a discussion about symptoms, possible causes, diagnostic
procedures, complementary therapies, elimination problems, pain, fatigue,
cognitive and mental problems, mobility, speech and eating difficulties is presented.
Then a discussion on living with MS follows. The concerns addressed here
include employment issues, financial services; relationships with one"s
partner, family members, friends, medical professionals; and pregnancy and childbirth.
In all areas of concern practical recommendations are given for dealing with
the difficulties experienced by persons with MS. The last chapter regarding general
information identifies current areas of research including clinical trials and
views of those who participate in them.
Topics for discussion are balanced whereby
positions for or against a particular issue are presented and where doubt exists,
the person is referred to his/her health professional for advice. The somewhat
larger print, presence of cartoons and illustrations together with the question
and response format that presents practical information for common concerns of
persons with MS makes this a useful book for them. A glossary containing
italicized words that appear throughout the chapters provide easy to understand
explanations of these terms.
The resources listed in the Appendix and in
the chapters on drugs and services for disabled persons are UK based, but the book does provide a
very useful guide for anyone coping with MS or caring for
someone with MS.
Professor Ian Robinson MA is Director of
the Brunel Research Unit, Brunel University.
Dr Frank Clifford Rose FRCP is a
Consultant Neurologist and the Director of the London Neurological Centre, Harley Street, London.
Neilson BSc, PhD is Lecturer in the Department of Epidemiology,
University College, Cork, Eire and former Director of Medical
Information Systems at CSHSD, BrunelUniversity, where he managed the National
Register of People with Multiple Sclerosis.
Gulick, PhD, FAAN, RN
Dr. Gulick is a Professor at Rutgers, The State University of New
Jersey. Her experience in the area of multiple sclerosis
includes a public health nurse caring for patients with MS and conducting
research with persons with MS and their families. Her areas of research include
instrument development, coping, social support, quality of life, and effects
of infant feeding method on the health of mothers with MS and their infants.