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|Esclerosis Múltiple: Guía Practica Para el Recién Diagnosticado|
Múltiple: Guía Practica Para el Recién
Free Preview: Introduction
Esclerosis Múltiple: Guía Practica para el Recién
The diagnosis of multiple sclerosis (MS) poses potential concerns related to all aspects of life and plans for the future. Family members and other loved ones are similarly concerned, and everyone involved struggles to make sense of life with this permanent intruder. One of the first responses is usually an active search for information about the disease itself and its potential long-term effects. This book was written specifically for newly diagnosed people with MS, their families, and friends.
Until now, there have not been any books dealing with these issues in the Spanish language. This new translation will be of interest to all Spanish-speaking people with MS in the United States, Central and South America, and elsewhere. Following are copies of the title page, table of contents, and preface for the book.
Esclerosis Múltiple: Guía Practica para el Recién Diagnosticado is designed for use as an educational tool for those who have just received the diagnosis of MS and in support groups and seminars for the newly diagnosed. It offers up-to-date information about living effectively with this life-altering diagnosis. This new Spanish language edition includes updated information and addresses the changing needs of those diagnosed with MS in this era of rapidly expanding information about the disease and its management.
Capítulo (Contents). Qué es la Esclerosis Múltiple? y Cómo es Diagnosticada? Cuál is la Causa de la Esclerosis Múltiple? Qué Tratamiento esta Disponible?; Consejos Prácticos; Afrontando la Esclerosis Múltiple; El Trabajo y la Esclerosis Múltiple; La Investigación en la Esclerosis Múltiple; En Búsqueda de Tratamientos.
About the Translators: Dra. Teresa Corona Vázquez is a physician on the
staff of the National Institute of Neurology and Neurosurgery in Mexico City (Directora de Ensenanza del Instituto Nacional de neurología y Neurocirugía
"Manuel Velasco Suárez" en la Ciudad de México); Patricia F. De
Thomas is with the Multiple Sclerosis Society of Mexico (Asociacíon Mexicana Contra la
Este libro ha sido adaptado y traducido al español para ayudar a las personas hispanohablantes que han sido diagnosticadas con Esclerosis Múltiple, así como a los miembros de su familia y amigos. Servirá como guía para aprender a conocer la enfermedad, sus síntomas, el impacto sobre sus vidas y los tratamientos médicos ahora disponibles para manejar y controlar eficazmente una enfermedad que, desafortunadamente, hasta ahora no tiene cura.
Es un momento de gran emoción en la investigación con avances rápidos en el manejo clínico, para que la mayoría de las personas con Esclerosis Múltiple sea capaz de llevar una vida productiva, plena, con dignidad e integración total a su comunidad. Los capítulos tratan la naturaleza de la Esclerosis Múltiple y proporcionan sugerencias prácticas para su manejo.
En países del continente americano como Canadá, Estados Unidos, México, Brasil y Argentina existen Asociaciones contra la Esclerosis Múltiple que forman parte de la Múltiple Esclerosis Internacional Federación (MSIF) las cuales ofrecen servicios informativos y guía tanto a agrupaciones de pacientes y sus familiares como a la comunidad médica y de investigación.
Informacion de Autores:
Los autores originales de esta Guía, Drs. Nancy J. Holland y Stephen C. Reingold son Vicepresidentes de la Asociación Nacional de los Estados Unidos (National MS Society) y son responsables de los Programas Clínicos y la Investigación respectivamente. Dr. Murray encabeza la Clínica de Esclerosis Múltiple de Dalhousie University, Halifax, Canadá. La Dra. Teresa Corona quien ha revisado cuidadosamente esta Guía y su traducción al español es Directora de Enseñanza del Instituto Nacional de Neurología y Neurocirugía Manuel Velasco-Suarez (INNN) en la Ciudad de México y miembro del Comité Médico de la AMCEM y MSIF International Medical Advisory Board.
Indice: Prefacio, Introducción, ¿Qué es la Esclerosis Múltiple y Cómo se Diagnostica?, ¿Cuál es la Causa de la Esclerosis Múltiple?, ¿Qué Tratamientos están Disponibles?, Consejos Prácticos , Afrontando la Esclerosis Múltiple, El Trabajo y la Esclerosis Múltiple, La Investigación en la Esclerosis Múltiple — La Búsqueda de Respuestas, Asociación Mexicana contra la Esclerosis Múltiple — AMCEM, Referencia Rápida
About The Authors
Nancy J. Holland, Ed.D.
Dr. Holland is Vice President of Professional Resource Center and Clinical Programs at the National Multiple Sclerosis Society in New York. She directs the Society's activities to improve access to health care, and the quality of that care, for people with MS. Dr.Holland earned a doctorate in higher and adult education from Teachers College, ColumbiaUniversity, and holds undergraduate and graduate degrees in nursing. She received a Career Development Award from the National Institute on Disability and Rehabilitation Research and is author/editor of more than 60 MS-related articles and books including Multiple Sclerosis: A Guide for Patients and Their Families, Multiple Sclerosis: A Guide for the Newly Diagnosed, Comprehensive Nursing Care in Multiple Sclerosis, Multiple Sclerosis: A Self-Care Guide to Wellness and Multiple Sclerosis in Clinical Practice. She is a founding member of the Board of Directors of the International Organization of MS Nurses. She is the Chair of the Research Committee of the IOMSN.
T. Jock Murray, OC, MD, FRCPC, MACP, FRCP (Lon), LLD (Hon St FX), DSc (Hon Acadia).
Dr. Jock Murray is Professor of Medical Humanities, DalhousieUniversity, Halifax, Nova Scotia. He is a Professor of Medicine (Neurology) and Director of the Dalhousie Multiple Sclerosis Research Unit. He was Dean of Medicine at DalhousieUniversity from 1985-1992. He holds joint appointments in the Departments of Family Medicine, Community Health and Epidemiology, and History.
Following two years in general medical practice Dr. Murray took postgraduate training in internal medicine and neurology in Halifax and Toronto. He was a Commonwealth Scholar in 1967 and studied at the University of London in England, and the National Hospital, Queen Square. He accepted a full-time appointment on the Faculty of Medicine at DalhousieUniversity, and became Chief of Medicine at Camp Hill Hospital, and later Head of the Division of Neurology and Royal College Program Director.
He was a Vice President of the AmericanAcademy of Neurology and in 1999 received the Dr. AB Baker Award for Lifetime Achievement in Neurological Education. He served as President of the Canadian Neurology Society. He was President of the Association of Canadian Medical Colleges. He served as Governor of the AmericanCollege of Physicians, and then Chair of the Board of Governors. He was a Regent of the College for four years and Chair of the ACP Board of Regents from 1995-1997.
Dr. Murray has over 200 medical publications including a textbook of neurology, now in its 4th edition, and is a contributing author to seven other textbooks. He is on the editorial board of several medical journals, and has served as Chair of the Publication Policy Committee of the ACP, and is a member of the Publication Committee of the Canadian Medical Association. He was the founder and first President of the Dalhousie Society for the History of Medicine, a past- President of the Canadian Society for the History of Medicine and currently book review co-editor for the Canadian Bulletin for the History of Medicine. He was a founder and currently is past-president of the Consortium of North American MS Centres, and was Chair of the Canadian Medical Forum.
He has been the recipient of many awards, including Professor of the Year at DalhousieUniversity by the medical students. He has been made an Honorary Member of the Canadian Radiological Society and the College of Family Practice of Canada. He was awarded the Cutter Medal by Phi Rho Sigma International. He delivered the first Wendell McLeod Lecture of the Association of Canadian Medical Colleges and gave the 1995 Richardson Lecture at the Congress of Neurological Sciences. He was the recipient of the 1995 John B Neilson Award of the Associated Medical Services and Hannah Institute for the History of Medicine. In 1996 Dr. Murray was awarded the Seymour Medal by the University of KansasSchool of Medicine. In 1997 he was awarded a Mastership by the AmericanCollege of Physicians. In 1999 he received the Dr. Nicholas Davies Award for Medical Humanities from the AmericanCollege of Physicians/American Society of Internal Medicine and the Dr. AB Baker Award from the Academy of Neurology. In 2000 year he was the recipient of the Labe Scheinberg Award for Lifetime Achievement in Multiple Sclerosis from the Consortium of MS Centers. In 2001 he has been awarded the Mentor of the Year Award from the RoyalCollege of Physicians and Surgeons of Canada.
Dr. Murray was awarded honorary degrees from St.FrancisXavierUniversity and AcadiaUniversity. He was awarded the Canada 125 Anniversary Medal and has been appointed an Officer of the Order of Canada.
Dr. Murray and his wife Janet have four children and five grandchildren. He and his wife have written a biography of Sir Charles Tupper and Dr. Murray is just completing a book on the history of MS, as well as beginning the work on a book on the history of Dalhousie Medical School.
Dr. Reingold is responsible for the national research programs activities of the National Multiple Sclerosis Society, the only voluntary health organization in the United States dedicated to improving the quality of life for those living with multiple sclerosis, through programs of research, services, education and advocacy.
Responsibilities include the administration of an annual multimillion research and training program supported with Society funds and oversight of the Society's clinical research and research information programs. He serves as liaison between the Society and MS basic and clinical research scientists and physicians, Federal and other agencies, local Society chapters, and pharmaceutical corporations, undertaking the search for new MS treatments.
Dr. Reingold obtained a doctoral degree in neurophysiology from CornellUniversity and was affiliated with PrincetonUniversity and RutgersUniversity, before joining the National Multiple Sclerosis Society staff in 1983. He has over 50 scientific publications related to MS and other biomedical research areas.