June Halper is a certified adult nurse practitioner who has specialized in multiple sclerosis since 1978. She was a founder of the MS Center in Teaneck, NJ and was the Executive Director until 2008. Ms. Halper was president of the Consortium of Multiple Sclerosis Centers from 1995-1997 and has been the Executive Director since 1992.
Ms. Halper has published and lectured extensively on multiple sclerosis and its ramifications. Her numerous publications include Comprehensive Nursing Care in Multiple Sclerosis and Advanced Concepts in Nursing Care in Multiple Sclerosis, co-editor of Staying Well with Multiple Sclerosis: A Self-Care Guide, and co-editor of Nursing Practices in Multiple Sclerosis: A Core Curriculum. Ms. Halper chaired the first Multiple Sclerosis Nurse Specialist Consensus Committee's development of a monograph on the nurse's role in adherence to complex protocols; the impact of cognitive impairment in MS Nursing care; and the nurse's role in patient's and family's quality of life. She is a member of the American Academy of Nurse Practitioners, the founding director of IOMSN, the International Organization of MS Nurses, and the recipient of the IOMSN's first June Halper Award for Excellence in Nursing in Multiple Sclerosis. She was inducted as a Fellow into the American Academy of Nursing in November 1999. In 2000, she spearheaded the establishment of the Multiple Sclerosis International Credentialing Board who developed the first international certification examination in multiple sclerosis nursing offered in June 2002 and bi-annually thereafter. As Executive Director of the CMSC, she initiated the first certification examination for multi-disciplinary MS specialist in 2004. In 2010, she oversaw CMSC's approval by ACCME as a provider of continuing medical education for physicians.
Mission of the Consortium of Multiple Sclerosis
To enhance collaboration of members for the improvement of care and the acquisition of knowledge. To increase resources and to transmit information, for the benefit of those affected by multiple sclerosis.
The CMSC will accomplish this mission through programs of comprehensive care, education and research.
Letter from the Chief Executive Officer
Dear Members of the CMSC:
The CMSC has steadily grown in membership and services since its formation in 1986 as a 501c(3) organization of MS health professionals of all specialties. The CMSC continues to be the largest and only multi-disciplinary professional organization for multiple sclerosis in the world. Although world events have resulted in ongoing concern, the CMSC has remained focused on addressing issues related to MS care and research. Through activities and services outlined in the achievement section of this report, the CMSC proactively responds to and represents the needs of our membership.
- The International Journal of MS Care is the official journal of the CMSC, IOMSN, LACTRIMS, and RIMS. It is a peer-reviewed publication and contains articles that focus on MS research, clinical care, psychosocial implications, and rehabilitation. The journal is in both a print format and can be found on-line at www.mscare.com. The journal also includes case studies, clinical controversies, and supplements that focus on timely issues in multiple sclerosis.
- The CMSC/NARCOMS Registry is a recruitment database that was developed to provide a resource for linking investigators with patients who meet their required profiles. The registry is used for a wide range of studies including epidemiology, health care delivery, alternative therapies and drug trials. The assembled data also offers insight into diagnosis, symptoms, treatment and course of disease. The NARCOMS Registry is unique in that it is patient-driven; registrants provide extensive information related to their experience with MS. Currently there are 31,000 participants.
- The MS Exchange is the quarterly newsletter for the CMSC and the International Organization of MS Nurses. It contains reports from major meetings, articles that focus on particular care issues in MS, research updates, and a calendar of events. A special pullout section focuses on news for MS nurses worldwide. The editorial board of both the IJMSC and the MS Exchange reflect the multi-disciplinary nature of the Consortium of MS Centers. Its strong affiliation with IOMSN mirrors the CMSC's commitment to global outreach in MS care.
- The CMSC website offers book reviews, discussion forums, articles, power point presentations, a Meet the Experts section, video presentations, resources, member centers information, a directory, job opportunities, as well as news from its special interest groups. There is also a section devoted to Breaking News and Kudos. The Website Committee has 11 Project Leaders and 43 Peer Reviewers representing the varying disciplines involved with MS care. It is national and international in scope.
- The Foundation of the Consortium of MS Centers (FCMSC) was established as a 501(c)(3) to support the education and training of health professionals who specialize in multiple sclerosis. Donations to the Foundation have been used to support fellowships for MS training doctorally and post-doctorally, scholarships to attend meetings including our annual meeting, and to conduct research.
- The CMSC has facilitated numerous advisory meetings with the pharmaceutical industry. Not only has our organization participated in data collection via the CMSC/NARCOMS project along with data analysis, our thought leaders have advised leaders of the pharmaceutical industry in the development and implementation of research protocols in symptom management, psychosocial concerns, and clinical trials. The CMSC is extremely responsive to both our Partners in Industry and Partners in the Community in their efforts to fight against multiple sclerosis.
- The CMSC has supported and enhanced the development of numerous MS centers throughout North America. It is has also worked closely with organizations such as LACTRIMS, our Latin American counterpart, to assist in its development and the dissemination of information about MS throughout the Caribbean, Central America, and Latin America.
- The CMSC spearheaded the development of Clinical Practice Guidelines in MS. Beginning in 1995, the CMSC collaborated with the MS Council for Clinical Practice Guidelines supported by PVA to finalize guidelines in Urinary Dysfunction and MS, Fatigue and MS, Immunizations and MS, Disease Modifying Therapies in MS, and during 2005, Spasticity Management in MS. These guidelines have been disseminated worldwide and are beginning to be studied in terms of outcomes. Since that time, CMSC has published numerous Best Practices in MS care and several White Papers on topics such as advocacy, self-management, and comprehensive care.
- The Veterans Administration has a significant population of MS patients within their system. The CMSC has supported membership in our organization via a grant from EPVA (now called United Spinal Association) and currently there are over 53 VA centers who belong to the CMSC. The VA Special Interest Group was formed several years ago and each year this group holds special programs at our annual meeting. In 2002, two VA Centers of Excellence were established in MS: VA Baltimore on the East Coast and VA Seattle on the West Coast. The VA presence has grown substantially at the CMSC and this collaboration will lead to more research into the management of multiple sclerosis.
- Rehabilitation professionals belonging to the CMSC have established a Special Interest Group, International Organization of MS Rehabilitation Therapists. The purpose of this group is to examine and standardize rehabilitation practices in multiple sclerosis and to conduct research into outcomes of care.
- In 2004, the CMSC held its first certification in multiple sclerosis for MS professionals (rehabilitation, counselors, LPNs, medical assistants). This certification as an MS expert validates and recognizes multiple sclerosis expertise in each professional's chosen field. The examination is offered via online testing at specified centers. Please visit http://www.ptcny.com/ for additional information.
- In 2010, the CMSC was approved by ACCME as a provider of continuing medical education for physicians. Since that time, CMSC continues to provide national and regional accredited educational programs for all professional members of the MS team.
- The IOMSRT has grown to envelope the entire range of MS rehabilitation. Mentorship programs and online training continues to enhance and increase knowledge and skills.
- Since 2007, ACTRIMS has joined with the CMSC at its annual meeting, making this event the largest educational program in MS in North America.
Welcome to the new view of multiple sclerosis as defined by our proactive approach to MS Care and Research; welcome to the CMSC.
MSN, APN-C, MSCN, FAAN
Chief Executive Officer